KIIDS

Keeping Individuals with Intellectual Disabilities Safe

a grassroots effort

of parents, family & friends

protecting the RIGHTS of our loved ones

to live in the Community THEY need

KIIDS


PROGRESS ON THE PETITION TO STOP HB #1650

9,628 Signatures as of December 10, 2017 and more to come!

MANY THANKS TO ALL THE COMPASSIONATE AND CARING PEOPLE OF PENNSYLVANIA!

YOU HAVE STOOD UP AND GIVEN A VOICE TO THOSE WHO HAVE NO VOICE!

Take a Virtual Tour of a PA State Center

Take a tour of campus living at White Haven State Center and see for yourself all the amenities, campus facilities and the high quality of life White Haven provides for the residents! 

KIIDS

Keeping Individuals with Intellectual Disabilities Safe

a grassroots effort

of parents, family & friends

protecting the RIGHTS of our loved ones

to live in the Community THEY need

We at KIIDS (Keeping Individuals with Intellectual Disabilities Safe) are the parents, family and friends of individuals with intellectual disabilities and dual diagnosis, including autism, living in the Pennsylvania State Developmental Centers.


There are four levels of Disability: Mild, Moderate, Severe and Profound.  


THERE NEEDS TO BE A RANGE OF SERVICES

High functioning, Mildly and moderately ID individuals can live safely and well in a community group home, but not everyone can.  The developmentally disabled are a diverse group of people and need a diverse range of services from which to choose to meet their needs.


Our folks are severely and profoundly disabled, medically fragile and/or behaviorally challenged and their needs are complex.


We advocate for the RIGHTS of our loved ones and for all Pennsylvania citizens to be able to CHOOSE the appropriate quality Intermediate Care Facilities that THEY need for their medically and behaviorally challenging and complex disabilities that require intensive support.


Disabled citizens are entitled by federal law to appropriate and safe levels of care 24/7. Dually diagnosed individuals present the severest challenge to care providers. This is the exact population that the Pennsylvania State Developmental Centers specialize in. Along with mental impairment, residents are also medically fragile, behaviorally challenged or all three. The behaviorally challenged is a particularly hard clientele for community providers to handle safely. It is where over-medication, abuse and a shifting burden to local emergency responders can often be found. Quality of life and quantity of activity actually drops from what the State Centers provide. It is important to keep Pennsylvania’s State Centers open and funded. 


The State Centers work when Community Group Homes fail. Centers have a therapeutic value.  When multiple forms of care are provided in the same building, professionals and caregivers, work together to solve medical and behavioral crises quickly and safely.


Generations of justly compensated caregivers have a combined knowledge, experience and intuition that provides a "PERFECT STORM OF CARING" for our severely disabled family members.

 

IT IS JUST TOO EXPENSIVE TO TRY TO DUPLICATE THIS PROFESSIONAL ENVIRONMENT IN COMMUNITY GROUP HOMES.  The compassionate people of Pennsylvania set aside the State Developmental Centers to serve the people who need them.


But now House Bill #1650 is being proposed to eliminate all Pennsylvania's State Centers, threaten the homes of our loved ones and take away the only meaningful community they have.  Please help us say NO to HB #1650.


PUT MOST SIMPLY, YOU DON'T ROB PETER TO PAY PAUL, EXPANDING CHOICE (of community group homes) FOR SOME SHOULD NOT COME AT THE EXPENSE OF ELIMINATING CHOICE (Congregate Care Facilities) FOR OTHERS . . .​

-Attorney William Choslovsky


The State Centers Work, When the Community Group Homes Fail

Not everyone can live safely in a community group home, there needs to be more than one type of residential model.  Give every developmentally disabled individual a choice and a range of services and living arrangements.

Joey is a young man with dual diagnosis, autism and intellectual disabilities.  He suffered for 4 years in the Community Group Home Service System, tossed into five different psychiatric wards by three different community group homes businesses unequipped to handle his complex needs, who would then discharge him from their care.   Finally Joey won court battles all the way to the Commonwealth Appeals Court to gain admission to appropriate care in White Haven State Center. Click on his picture to see more details of his journey.


No one should ever have to suffer like he did. No one.


Now his life, his choices, his home and his future are threatened by HB #1650.


Jimmy, Pictures of a Lifetime

Many of the residents of State Centers are elderly and medically fragile.  Jimmy has been a resident of White Haven State Center for 52 years.  He has the intellectual capability of a 16 month old.  He cannot verbally express pain or even blow his own nose.


Over the past 52 years, he had a life at White Haven Center that is far superior to what is available to him and others with similar disabilities in the community.  Until he had his stroke, he had the freedom to walk the Center grounds which are quiet and safe from traffic.  


Jimmy as well as other residents participate in frequent trips to restaurants, shopping centers, entertainment venues, the local Lions Club chapter events and religious services.


Over the years as Jimmy ages his health has declined and in addition to his profound intellectual and seizure disorders, he developed a menu of  geriatric illnesses including arthritis, osteopenia, enlarged prostrate, edema in the legs, hydrocephalus, kidney stones, heart failure and shrinkage in one eyeball.  The stroke he suffered necessitates a mechanical lift to move him from his bed to a wheelchair and specialized equipment for bathing.


Now, more than ever, Jimmy needs the 24 hours per day, seven days a week, excellent on-site nursing services, the staff who understand his non-verbal communication, and the companionship of his peers he has come to know and love over the past 52 years at White Haven State Center.


See Letter to Representative Benninghoff

What the experts say

... large instit​utions are, in most instances, less expensive than community residences for these challenging populations.

- Schalock and Fredericks

Petition to Stop HB #1650

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